PDP Exclusives by Rebecca

Friday, May 6, 2011

Updates: 05.06.2011

♥TEAM CALEB♥ bracelets are on their way!! :D To try to help the George family with costs incurred during Caleb's stay, I'll be offering them in exchange for donations to the family. If you'd like to have one, please contact Rebecca @ teamcalebgeorge@gmail.com ♥ They'll be available in child & adult sizes. Have a great weekend! ♥TEAM CALEB♥

Updates: 05.05.2011

New Team Caleb Default! 



We met with the doctors today and they are all very happy with how well Caleb is doing. The surgeon said he is very happy that they didn't have to do as much to his heart as they were thinking they might have to do looking at the echos of his heart before he was born. They can't give any timeline on him coming home because its all going to depend on him.  They are going to try to take him off of CPAP again tomorrow and try the nasal cannulas tomorrow. If he does well with that we can hold him. They did put him back on some pain meds around the clock and are going to slowly wean him off of them since he is having withdrawals from them. :( I hate seeing him have the jitters from that. Once he is back on just the oxygen with the nasal cannulas they will start trying bottle feeds and if those go well we can try to nurse.

Updates: 05.04.2011

Caleb was having a hard time expanding his lungs enough today and his sats kept dropping so they went ahead and put the cpap on him. He still breathes on his own but this helps him to breathe a little easier



8 pm: Caleb is still doing well. He was having a hard time fully expanding his lungs still bc he still has old secretions in his lungs from his pulmonary hemorrhage. Because his sats kept dropping today they decided to put him on the cpap. He still breathes on his own but the cpap gives a continuous positive pressure flow of oxygen and it Just helps to get him to fully expand his lungs. This isn't a step backwards, he just needed a little more help. They are still doing breat...hing treatments and also were going to do another treatment to help relieve any inflammation around his vocal cords that could also be contributing to him having to work so hard to breathe since he had some sounds thy could hear in his throat that would indicate that.

He was still having some issues with fully digesting his feedings but it was slowly getting better.

We have a conference with all of the doctors tomorrow to kind of go over everything and discuss the next steps. Will update more then.

Thank you all so much for the continued prayers and support. We are so blessed!

Updates: 05.03.2011

From Grandma: I love you Team Caleb! Thank you for all the prayers and support. Caleb is breathing on his own now. ♥♥ TEAM CALEB ♥♥  I cannot say enough about the doctors, surgeons and nurses at Rady's Childrens Hospital, they are amazing. It takes a special kind of person with a huge heart to do what they do, especially the NICU nurses. GOD BLESS YOU!





Updates: 05.02.2011

6 pm: The doctors were giving Caleb another day on the ventilator today since they are still getting old blood out. I just spoke with his nurse and his last gasses were much better so they are going to give him a steroid overnight to make sure his vocal chords aren't swollen to take out the breathing tube. Then the plan is to take it out in the morning! He is doing great with them upping his feeds through his tube too!

Updates: 05.01.2011

9 am: Just called and talked to Caleb's nurse (my favorite nurse too!) and he is doing great. The surgeon is there to take out his drainage chest tube and then the plan for the day is to try to wean him off of the ventilator! :-) All of our prayers are being answered! Thank you all so much!!!



Updates: 04.30.2011

10 am:  Someone is ECMO FREE!! 



9:30 pm: Just talked to Caleb's nurse and he is doing great. She was giving him a small dose of medicine to calm him down b/c she had just moved him to his left side and since he isn't used to this it upset him a little bit. She did say though that he had only had one dose of the medicine earlier today and that is a great thing. Before he was getting it around the clock. Go Caleb!! ♥ Team Caleb ♥





Updates: 04.29.2011

10 am: Scott and I are taking split shifts at the hospital today. Both of us being gone a few hours every day was getting to be too much for Alex. Scott is there now and he said they are going to do a trial run off of ECMO to see how Caleb does. His lungs improve every day and the bleeding hasn't completely stopped so they would really like to get him off of ECMO, but its all up to Caleb at this point. ♥ Team Caleb ♥


5 pm: So they took Caleb off of ECMO on an hour trial today and he did great so the plan is to take him off for good tonight or tomorrow depending on the surgeons schedule. Thank you for all of your continued prayers...they are working!! ♥ Team Caleb ♥


10 pm: Scott just called and they took Caleb of of ECMO. But now they can't get his blood pressure to stabilize. If they can't get it to they will have to put him back on ECMO again. Hopefully they can get it to stabilize soon.

Updates: 04.28.2011

I apologize for the delay on posting updates.   Catching up now :) 


9 am: Called the NICU to see if there was an update as far as getting him off of ECMO today. They ended up having to open him back up to check to see why he was bleeding so much. The Dr didnt have the report from the cardiologist back yet, but they said they would have it back by the time they got there in a couple of hours. Please pray the bleeding stops for good and he is healthy enough for them to get him off of ECMO.


Noon: The bleeding has slowed down and as long as it stays this way then they are going to leave Caleb on the ECMO for a couple of more days to try to get his lung function better but if it doesn't stay down then they are going to try to get him off the ECMO because of the blood thinners. ♥♥ Team Caleb ♥♥